children with DIABETES Online Community

Posted: August 5, 2016 at 9:45 am

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My name is Isabella-Rose. I was diagnosed with type 1 diabetes on 8 April 2010. I was 9 years old then - but I turned 10 in May.

I had been feeling a bit bad for a while but I thought that I was just tired or feeling stressed - and that's what my Mum thought too. I was drinking a lot and going to the bathroom a lot - sometimes wetting the bed at night which was really embarrassing and my Mum would get upset with me because she thought I was not going to the bathroom before I went to bed, or I was drinking too much during the night. My Mum says that I was really really grumpy too and I cried a lot and kept getting really upset with my friends at school.

Then at Easter time this year we had school holidays and my Mum said she thought I was getting a big skinny. She weighed me and I had lost about 4kg since the last time I was weighed about 6 weeks before - but I had also grown about 2cm taller. My Mum said that that was when she realised that something was not right. The next day we went to the Royal Easter Show in Sydney and because it was so busy there and there were so many people my Mum had to come to the bathroom with me - and I went to the bathroom about every 10 minutes. My Mum knew how much I was drinking but said that I should not be going to the bathroom that much. The next morning my Mum rang the doctor's office and told them she thought I might be diabetic. My Mum's sister was diagnosed with adult onset Type 1 Diabetes only a year ago so she knew a bit about it.

Visit Isabella-Rose's page More children with diabetes

CWD presents It's Not Just a Numbers Game: Parenting the Child with Type 1 Diabetes with Joe Solowiejczyk.

A Comparative Effectiveness Analysis of Three Continuous Glucose Monitors: The Navigator, G4 Platinum, and Enlite. Free full text available in HTML and PDF formats.

Increasing Incidence of Type 1 Diabetes in Youth - Twenty years of the Philadelphia Pediatric Diabetes Registry. See also Type 1 Diabetes in Urban Children Skyrockets.

In the absence of renal disease, 20 year mortality risk in type 1 diabetes is comparable to that of the general population: a report from the Pittsburgh Epidemiology of Diabetes Complications Study.

Effectiveness of Sensor-Augmented Insulin-Pump Therapy in Type 1 Diabetes. Free full text available in PDF format. See also Continuous Glucose Monitoring - Coming of Age, also available in PDF format.

Threshold-Based Insulin-Pump Interruption for Reduction of Hypoglycemia.

Suspended insulin infusion during overnight closed-loop glucose control in children and adolescents with Type 1 diabetes.

Prolonged Nocturnal Hypoglycemia Is Common During 12 Months Of Continuous Glucose Monitoring In Children And Adults With Type 1 Diabetes.

Prevention of Nocturnal Hypoglycemia Using Predictive Alarm Algorithms and Insulin Pump Suspension.

Use of a real-time continuous glucose monitoring system in children and young adults on insulin pump therapy: patients' and caregivers' perception of benefit.

Nocturnal hypoglycaemias in type 1 diabetic patients: what can we learn with continuous glucose monitoring? See also Nocturnal hypoglycaemia in Type 1 diabetic patients, assessed with continuous glucose monitoring: frequency, duration and associations.

Defective Awakening Response to Nocturnal Hypoglycemia in Patients with Type 1 Diabetes Mellitus. Free full text available in PDF format.

Awakening from Sleep and Hypoglycemia in Type 1 Diabetes Mellitus. Free full text available in PDF format.

The Family Support Network now includes over 5,750 families from 50 states and 87 countries. If you're new to diabetes, the Family Support Network will help you connect with families near you or find a babysitter. If you haven't joined, please become part of the Family Support Network.

The Quilt for Life now has 756 panels. The latest quilt is from Katrina.

Other news and information

Learn more about continuous glucose sensors and see Getting Started with Continuous Glucose Monitoring by Linda Mackowiak, MS, RN, CDE.

The "Un-Tethered" Regimen by Dr. Steve Edelman offers pump users an alternative strategy by combining a pump with Lantus.

Any child who was diagnosed in their first year of life should be screened for Kir6.2 Mutations. This mutation causes an extremely rare form of diabetes that can be treated with oral medication. To learn more, see Switching from Insulin to Oral Sulfonylureas in Patients with Diabetes Due to Kir6.2 Mutations. Families in the US should contact Dr. Louis Philipson at the University of Chicago. More information is available at http://www.diabetesgenes.org.

Learn about Type 2 and Double Diabetes in kids.

You know you're the parent of a child with diabetes when ... ... your kid has one extra dance recital ticket and of all the people in the world to invite, she invites the school nurse. More Parent Humor

One of the best manuals on day-to-day diabetes management, Think Like a Pancreas by Gary Scheiner, is a must for all with type 1 diabetes. During his 25 years with diabetes, Gary has dedicated himself to determining how best to deal with the ups and downs of diabetes and is intent on sharing his knowledge with others. How to take insulin on days you plan to exercise, how specific types of exercise and certain foods affect one's blood sugar, and how to prevent hypo- and hyperglycemia, are among the subjects covered in this book. Gary has specific advice about what to do when you are having surgery, how caffeine affects blood sugars and concise descriptions on how to calculate insulin boluses. Newly updated in 2011 to include the latest on pumps, sensors, and even incretins, Think Like a Pancreas remains one of the few must-have books for everyone living with type 1 diabetes and is highly recommended.

-- Review by Jeff and Brenda Hitchcock

Teens with Type 1 Diabetes and their Parents are needed for a shared decision making study about the use of insulin pumps and continuous glucose monitoring systems.

PERL (Preventing Early Renal Loss in Diabetes) is a clinical trial for people with type 1 diabetes who have early signs of kidney problems. Our goal is to test a new way to reduce loss of kidney function using a safe and inexpensive medicine. We are seeking adults with type 1 diabetes to participate in our study.

Type 1 Diabetes TrialNet is a group of studies looking at the prevention and early treatment of type 1 diabetes.

Other Studies

Poll Results

Does your child's school district train teachers, coaches and other non-nurse school staff to give insulin?

Yes

16%

No

66%

I don't know

16%

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children with DIABETES Online Community

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