When Hudsyn was first given the label cerebral palsy, Dan and I sat in that tiny doctors office and listened as the neurologist explained what the medical term actually meant. We nodded our heads partially in disbelief, yet also having a large amount of relief that we finally had a diagnosis.
The tough part came when he began talking about what we do next. Some part of me was really hopeful. Surely because this diagnosis is so common, there are a variety of things we can do to help our little girl live a full life. But after hearing the statements, We cannot repair brain damagethere is no cure for this outcome. So what we do now is treat symptoms and make her as comfortable and happy as possible by encouraging the healthy cells she has left to work hard and operate at maximum potential.
I felt like Id been punched in the stomach.
No cure? No way we can repair her brain to go back to what God had created for her in my womb? This wasnt supposed to be the way it ended. Give me the path, docanything. Ill do anything to help her get better. Will it take thousands of dollars to get a treatment that Id have to go to China to receive? Ill do it. But saying theres nothing you can dosome part of me refused to accept that. And Im very grateful I didnt. Because with hope and determination comes solutions.
We began prayinga lot. Then I began to researchanything I could get my hands on to help understand CP and what our life was going to be like in the future. It hurt because some of it was unbelievably difficult to imagine. I asked other parents. I found treatments like Cuevas Medek Exercise therapy, Hyperbaric Oxygen Therapy (HBOT), and a host of alternative treatments which I wrote about last May. But none of these proved to improve her condition significantly on their own.
And then, a glimmer of hope surfaceda mom on one of my support groups pointed me to a hospital in Panama City that was doing something called Stem Cell Therapy for kids with brain damageespecially those with the diagnosis of Cerebral Palsy. So I dug a little deeper and found videos like these:
Obviously, I was skeptical and so was Dan. I think his first statement after hearing that I was suggesting we take our daughter to Panama City to get stem cell injections was, Im sorry honey, but theres no way in hell were doing that.
I continued to research despite his skepticism and mine. I wanted to know more facts. Maybe we couldnt do it right now, but I wondered if this was a future possibility for her once it was approved in the U.S.
Cord banks in the U.S. are talking about itabout their healing and regenerative potential. As the master cells of the body, stem cells are the building blocks of blood, tissue, and organs. Cord blood stem cells are being used today to treat serious diseases like leukemia and sickle cell anemia. Theyre also being researched as treatment for conditions like cerebral palsy, traumatic brain injury (TBI), and hearing loss in clinical trials and lab research.
I continued my thirst of information by reading several books, articles, case studies and medical journals. I watched even more videos, presentations, listened to podcasts and audio recordings anything I could get my hands on to learn more about this type of therapy, but especially if it applied to kids and those with cerebral palsy. Below is a summary of the biggest points I pulled out of each resource:
Go here to read the rest:
Exploring Stem Cell Therapy for Cerebral Palsy | See the Seitz
- Kansas City MO Resources - Stem Cells: Get Facts on Uses ... [Last Updated On: August 22nd, 2014] [Originally Added On: August 22nd, 2014]
- Stem Cell History | A History of Stem Cell Research [Last Updated On: August 23rd, 2014] [Originally Added On: August 23rd, 2014]
- Midwest Stem Cell Therapy Center, University of Kansas ... [Last Updated On: September 1st, 2014] [Originally Added On: September 1st, 2014]
- Stowers Researchers Reveal Molecular Competition Drives ... [Last Updated On: September 6th, 2014] [Originally Added On: September 6th, 2014]
- Precise and programmable biological circuits [Last Updated On: October 24th, 2014] [Originally Added On: October 24th, 2014]
- Myocardial infarction and stem cells - National Center for ... [Last Updated On: October 31st, 2014] [Originally Added On: October 31st, 2014]
- Advisory Board, Midwest Stem Cell Therapy Center [Last Updated On: November 2nd, 2014] [Originally Added On: November 2nd, 2014]
- Therapeutic potential of human induced pluripotent stem ... [Last Updated On: November 5th, 2014] [Originally Added On: November 5th, 2014]
- Saint Lukes Mid America Heart Institute Offers Tips & Treatments For Heart Failure Awareness Week 2015 [Last Updated On: February 10th, 2015] [Originally Added On: February 10th, 2015]
- Topeka retailer honored as 'business of the year' [Last Updated On: March 7th, 2015] [Originally Added On: March 7th, 2015]
- Stem Cells for Paralysis: First of Its Kind Study [Last Updated On: April 7th, 2015] [Originally Added On: April 7th, 2015]
- Doctors in Kansas who treat or diagnose Stem Cell Transplant [Last Updated On: August 1st, 2015] [Originally Added On: August 1st, 2015]
- Egg Stem Cells - MIT Technology Review [Last Updated On: September 27th, 2015] [Originally Added On: September 27th, 2015]
- Kansas Regenerative Medicine Center [Last Updated On: October 19th, 2015] [Originally Added On: October 19th, 2015]
- Stem Cell Therapy for Urological Issues | Kansas RMC [Last Updated On: July 29th, 2016] [Originally Added On: July 29th, 2016]
- Stem cell program - University of Kansas Medical Center [Last Updated On: August 3rd, 2016] [Originally Added On: August 3rd, 2016]
- Kansas to Build First US Stem Cell Research Center | CorCell [Last Updated On: August 3rd, 2016] [Originally Added On: August 3rd, 2016]
- Stem Cell Therapy | Kansas RMC [Last Updated On: August 3rd, 2016] [Originally Added On: August 3rd, 2016]
- Stem Cell Therapy - North Kansas City Hospital, Kansas ... [Last Updated On: October 14th, 2016] [Originally Added On: October 14th, 2016]
- Stem Cell Collection - University of Kansas Hospital [Last Updated On: October 30th, 2016] [Originally Added On: October 30th, 2016]
- International Space Station's Crew Restored to Six People - Kansas City infoZine [Last Updated On: July 30th, 2017] [Originally Added On: July 30th, 2017]
- Scientists build DNA from scratch to alter life's blueprint - Kansas City Star [Last Updated On: July 30th, 2017] [Originally Added On: July 30th, 2017]
- Regenerative Medicine Market in the US - Forecasts, Segmentation, and Opportunity Assessment by Technavio - Business Wire (press release) [Last Updated On: August 8th, 2017] [Originally Added On: August 8th, 2017]
- Join Jon Kempin, LA Galaxy Foundation and Gift of Life Marrow Registry for Kick Blood Cancer on August 13 - LA Galaxy [Last Updated On: August 12th, 2017] [Originally Added On: August 12th, 2017]
- Paralyzed after pool accident, student heads back to college - Kansas City Star [Last Updated On: August 30th, 2017] [Originally Added On: August 30th, 2017]
- About Us, Midwest Stem Cell Therapy Center - KUMC [Last Updated On: August 30th, 2017] [Originally Added On: August 30th, 2017]
- Feared Zika virus kills brain cancer stem cells, new research shows - Kansas City Star [Last Updated On: September 8th, 2017] [Originally Added On: September 8th, 2017]
- Shawnee Woman Was Among First In The World To Undergo New FDA-Approved Cancer Therapy - KCUR [Last Updated On: September 8th, 2017] [Originally Added On: September 8th, 2017]
- Regenexx Kansas City | Helping your body heal itself [Last Updated On: September 24th, 2017] [Originally Added On: September 24th, 2017]
- Future Fertility Fix? Egg-Producing Stem Cells Found in ... [Last Updated On: October 14th, 2017] [Originally Added On: October 14th, 2017]
- Stem cells or Knee surgery - Kansas Regenerative Medicine [Last Updated On: June 28th, 2018] [Originally Added On: June 28th, 2018]
- Adult Stem Cell Therapy 101, MSCTC - University of Kansas ... [Last Updated On: July 7th, 2018] [Originally Added On: July 7th, 2018]
- Stem cells relieve chronic pain in Kansas City, MO [Last Updated On: July 30th, 2018] [Originally Added On: July 30th, 2018]
- Knee Stem Cell Treatments in Kansas City | Motus Biologics [Last Updated On: August 2nd, 2018] [Originally Added On: August 2nd, 2018]
- Kansas Stem Cell Center Close To First Clinical Trial | KCUR [Last Updated On: August 27th, 2018] [Originally Added On: August 27th, 2018]
- Stem Cell Therapy in Wichita, Kansas | Joint Pain Relief ... [Last Updated On: October 6th, 2018] [Originally Added On: October 6th, 2018]
- About Stem Cell Therapy - Kansas Regenerative Medicine [Last Updated On: November 29th, 2018] [Originally Added On: November 29th, 2018]
- Hip Stem Cell Treatment | Motus Biologics in Kansas City [Last Updated On: January 23rd, 2019] [Originally Added On: January 23rd, 2019]
- Stem Cell Therapy in Kansas City- Rejuvenate KC | Stem ... [Last Updated On: April 26th, 2019] [Originally Added On: April 26th, 2019]
- Stem Cell Procedures | Motus Biologics of Kansas City [Last Updated On: September 9th, 2019] [Originally Added On: September 9th, 2019]
- Kansas Regenerative Stem Cell Seminar - Stem Cell Centers ... [Last Updated On: September 10th, 2019] [Originally Added On: September 10th, 2019]
- Infanticide: Live Organ Harvesting Commonplace in US Abortion Mills - Church Militant [Last Updated On: October 17th, 2019] [Originally Added On: October 17th, 2019]
- Trial cancer treatment in Wichita - KAKE [Last Updated On: December 2nd, 2019] [Originally Added On: December 2nd, 2019]
- FHSU partners with Be the Match for bone marrow registry event - hays Post [Last Updated On: February 20th, 2020] [Originally Added On: February 20th, 2020]
- Seeing through a forest of SCN2A gene variation - SFARI News [Last Updated On: February 20th, 2020] [Originally Added On: February 20th, 2020]
- Incysus Therapeutics Announces Name Change to IN8bio, Inc. - GlobeNewswire [Last Updated On: August 28th, 2020] [Originally Added On: August 28th, 2020]
- IN8bio announces first-in-human Phase 1 trial Update from The University of Kansas Cancer Center using INB-100, IN8bio's Gamma Delta T-cell product... [Last Updated On: December 4th, 2020] [Originally Added On: December 4th, 2020]
- [Full text] Binding of the SARS-CoV-2 Spike Protein | HMER - Dove Medical Press [Last Updated On: April 15th, 2021] [Originally Added On: April 15th, 2021]
- Kelly lauds $21 billion state budget bill, vetoes $500,000 ... [Last Updated On: June 6th, 2021] [Originally Added On: June 6th, 2021]
- The controversy being created about the origins of the virus that causes COVID-19 - Frontline [Last Updated On: July 6th, 2021] [Originally Added On: July 6th, 2021]
- COVID-19 directly damages, creates scar tissue on the kidneys, study finds - WDAF FOX4 Kansas City [Last Updated On: January 5th, 2022] [Originally Added On: January 5th, 2022]
- Four researchers named recipients of the University Scholarly Achievement Award | The University of Kansas - KU Today [Last Updated On: March 25th, 2022] [Originally Added On: March 25th, 2022]
- Jayhawks shine at 2022 Capitol Graduate Research Summit | The University of Kansas - KU Today [Last Updated On: April 19th, 2022] [Originally Added On: April 19th, 2022]
- Chemical Markers That May Unlock Future Therapeutic Uses of mRNA - Lab Manager Magazine [Last Updated On: May 2nd, 2022] [Originally Added On: May 2nd, 2022]
- The Future of Parkinson Disease Therapies and the Challenges With Stem Cell Therapies - Neurology Live [Last Updated On: June 22nd, 2022] [Originally Added On: June 22nd, 2022]
- Doctors Transplant Kidneys to Children Without Need for Immune ... [Last Updated On: July 11th, 2022] [Originally Added On: July 11th, 2022]
- California is poised to phase out sales of new gas-powered cars - Kansas Public Radio [Last Updated On: August 30th, 2022] [Originally Added On: August 30th, 2022]
- Human cells in a rat's brain could shed light on autism and ADHD - Kansas Public Radio [Last Updated On: October 13th, 2022] [Originally Added On: October 13th, 2022]